This is me. I suffer from SLE Lupus, Lupus Nephritis and Fibromyalgia (along with other things but this is what I want to focus on). There is no cure for Lupus.
Lupus is Latin for wolf. In the 18th century, when lupus was just starting to be recognized as a disease, it was thought that it was caused by the bite of a wolf. This may have been because of the distinctive rash characteristic of lupus. (Once full-blown, the round, disk-shaped rashes heal from the inside out, leaving a bite-like imprint.)
Common initial and chronic complaints include fever, malaise, joint pains, myalgias, fatigue and temporary loss of cognitive abilities. Also, mouth and nose sores, numbness in hands and feet, fingers turning white and/or blue when cold, headaches, loss of hair, anemia, swelling in hands, legs and feet.
I'm sharing my story now because May is Lupus Awareness Month. If you want to learn more go to the Lupus Foundation of America website HERE.
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I've experienced painful/swollen joints and muscle pain on a daily basis. I've had so many symptoms that it took years to realize they were all caused by the same thing! One huge problem I have is memory loss. I make jokes about this as a coping mechanism. It definitely helps to laugh!
My body sometimes feels sore, but it works. I don’t sleep well most nights, but I do wake up to experience another day. A good day is when I can get out of bed and go to work! I’m thankful, because although my life isn't perfect, it is MY life and I choose to be thankful in it, as I continue to do the best I can.
I remind myself of this often because it's important to me. It continues to remind me that happiness is valuing what you have, and enjoying the people, places, objects and events in your life. You can almost always enjoy the things you have and make the best of the events happening around you if you decide firmly that you will in each and every moment. Is it easy? No, but it is definitely worth the effort!
One of my major triggers is stress. I've tried a few different things to learn to cope; some of them have worked and some of them didn't. It's a journey that I have to take. For myself, for my family and for my friends.
No, life isn’t perfect, (is it supposed to be?) but it’s pretty darn good. Do not dwell so much on creating your perfect life that you forget to live the one you have.